I am a 60 year old, 15 year veteran survivor of PTSD with a background of Parkinson’s Disease.
I did battle with the Public Trustee, and lost relationships of those who thought I was suffering mental illness when I described my treatment.
I thought the NDIS would not succumb to the money grab that always comes when the vulnerable are open to exploitation.
I am called a participant yet I have not been invited nor Notified of 3 most recent reviews where my funding has been not just halved but cut by three quarters, without warning.
I have been bullied by Agencies that are set up to provide SIL SUPPORTED INDEPENDENT LIVING but instead employ non English speaking backpackers (who are paid a meagre percentage of total hourly rates charged for care) .
I choose to live in my own home but I will no longer have the funding to employ staff on a 1:1 basis . Certainly not the 24/7 care I have received up to now.
I know There will be a time when my lack of funding will force me to live in what Support Workers , disparagingly call ‘houses’ … as they are certainly not a home .
While my primary support worker has been on a month leave , the SIL accommodation which provided short term respite for me , placed me in a 3rd floor unit, support workers had lift fobs and unit keys, we , the PAYING PARTICIPANT S did not.
I clearly remember the emotional day Julia proudly announced her wonderful NFIS plan.
A dream ,fast turning into a very similar to
Public Trustee nightmare.
… and whilst on this horse metaphor… As a participant in the NDIS, I respectfully would ask (if given the courtesy to contribute to a discussion ABOUT MY LIFE) … Is the NDIS conducting a marathon or a horse race.
Whatever it is I feel I am being flogged.
REGARDS “not dead yet )