Let’s get the cliches out of the way …

As Parkinson’s has become the house guest that out-stays their welcome and sitting on my hands is no match for the verocity of the Parkinson’s ‘off’ storm..

Just as it was when I was pregnant … (but that was finite and I got to have a cute , suede headed , baby at the end of it )

EVERY ONE has a pearl of wisdom about Parkinson’s

  • They say ; ‘You are so brave. ‘
  • (I say/ think :Thank you but what would you suggest ? How does it look to NOT TO BE BRAVE ?I have no choice )
  • They say ;My great grandmother, second cousin ‘s , once removed on my mother’s side has ‘that’ too.
  • (I think : You don’t want to hear, I will shut up and wait this out)
  • They say ;Alzheimer s is such a terrible disease.
  • Yes it is but Parkinson’s is not Alzheimer’s
  • They say ;Have you tried cannabis?
  • I think: Oh if only I had a $ for each time I was asked that.. 14 Years times at least once a day

and

I say ‘No I haven’t .

/though

of course I have.

…. and I if I am to face a dragon , a fierce, me eating dragon.. every three hours .. I want to be fully ME.

.

Published by wilbur26

Person with Parkinsons I am. I paint, I write, I live the best life I can.

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